CRF Blog

For Sale: Your Name and Medical Condition

by Bill Hayes

In For Sale: Your Name and Medical Condition, Bloomberg Businessweek reports on how data brokers sell lists of names of people with specific conditions.

As the population ages and consumers share more health data about themselves online, a burgeoning industry of data miners has emerged, scooping up often-personal medical data and selling it to marketers. While that’s a boon for companies trying to pitch products, privacy advocates warn that collection practices can cross the line. “People would be shocked if they knew they were on some of these lists,” says Pam Dixon, president of the nonprofit advocacy group World Privacy Forum. “Yet millions are.”

The lists sell for pennies a name and cover some of the most sensitive medical conditions. A database of 1.2 million people taking medication for depression costs 9.5¢ a name, and a list of almost 900,000 erectile dysfunction sufferers goes for 18.5¢ a name. [more]